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    Introducing the New REN Map (Where’s the Rare?)!
    Justin Wan
    • 3 days ago
    • 2 min

    Introducing the New REN Map (Where’s the Rare?)!

    The newly added REN Map. The Rare Epilepsy Network has created a new page for families and clinicians to use! With 80+ organizations...
    8 views0 comments
    Things You Should Know About the Rare Epilepsies & Social Wellness
    Justin Wan
    • Jul 21
    • 2 min

    Things You Should Know About the Rare Epilepsies & Social Wellness

    The month of July marks Social Wellness Month! Social Wellness Month is meant to highlight the positive effects of healthy relationships...
    12 views0 comments
    Epilepsy in Asian Americans and Pacific Islanders
    REN
    • May 24
    • 2 min

    Epilepsy in Asian Americans and Pacific Islanders

    This May celebrates Asian American and Pacific Islander Heritage Month. This month is dedicated to celebrating the contributions Asian...
    29 views0 comments
    Get to Know Cure GABRB2
    REN
    • Apr 22
    • 2 min

    Get to Know Cure GABRB2

    About GABRB2 GABRB2 epilepsy has a range of phenotypes from febrile seizures to severe developmental disabilities, epileptic...
    57 views0 comments
    Spotlighting Rare Epilepsies this Purple Day
    REN
    • Mar 24
    • 2 min

    Spotlighting Rare Epilepsies this Purple Day

    Purple Day takes place annually on March 26 as an international effort to spread awareness and resources about epilepsy. It’s a...
    21 views0 comments
    Things You Should Know About the Rare Epilepsies and Sleep
    REN
    • Mar 15
    • 2 min

    Things You Should Know About the Rare Epilepsies and Sleep

    March 13-19 marks Sleep Awareness Week 2022! Sleep Awareness Week celebrates and encourages healthy sleep. For those touched by the rare...
    30 views0 comments
    International Epilepsy Day 2022
    REN
    • Feb 14
    • 2 min

    International Epilepsy Day 2022

    Celebrate International Epilepsy Day & The Rare Epilepsies on February 14! Celebrated on the second Monday in February and founded by The...
    53 views0 comments
    Rare Disease & Rare Epilepsies
    REN
    • Feb 9
    • 2 min

    Rare Disease & Rare Epilepsies

    MANY CAUSES OF EPILEPSY ARE RARE Although epilepsy as a diagnosis is not rare, many causes of epilepsy are rare. When the underlying...
    68 views0 comments
    Raising Awareness of Rare Epilepsies During National Epilepsy Awareness Month (NEAM)
    REN
    • Nov 2, 2021
    • 2 min

    Raising Awareness of Rare Epilepsies During National Epilepsy Awareness Month (NEAM)

    Raising Awareness of Rare Epilepsies During National Epilepsy Awareness Month (NEAM)
    97 views0 comments
    Finding & Creating a Rare Epilepsy Community
    REN
    • Dec 7, 2020
    • 2 min

    Finding & Creating a Rare Epilepsy Community

    Diagnosed with a new rare epilepsy and looking for community? Tips follow from the Rare Epilepsy Network (REN) leaders. Do a google and...
    43 views0 comments
    Get to Know Tbc1d24 Mutation Foundation
    REN
    • Nov 25, 2020
    • 3 min

    Get to Know Tbc1d24 Mutation Foundation

    About Tbc1d24 Mutation Our rare epilepsy is caused by a mutation in the Tbc1d24 gene. For a person to be affected with this disorder, two...
    483 views0 comments
    Get to Know PMG Awareness Organization
    REN
    • Oct 16, 2020
    • 3 min

    Get to Know PMG Awareness Organization

    Get to know Polymicrogyria (PMG) & The PMG Awareness Organization
    69 views0 comments
    Get To Know Kathleen Farrell, MB BCh, BAO
    REN
    • Aug 26, 2020
    • 2 min

    Get To Know Kathleen Farrell, MB BCh, BAO

    What is Your Role I am the Senior Director of the Epilepsy Learning Healthcare System (ELHS) as part of the National Office team of the...
    42 views0 comments
    Looking for Data for Rare Epilepsies?
    REN
    • Jun 30, 2020
    • 1 min

    Looking for Data for Rare Epilepsies?

    Attention Patients, Advocates & Researchers - Rare Epilepsy Data
    39 views0 comments

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    Email: info@rareepilepsynetwork.org

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