Justin Wan3 days ago2 minIntroducing the New REN Map (Where’s the Rare?)!The newly added REN Map. The Rare Epilepsy Network has created a new page for families and clinicians to use! With 80+ organizations...
Justin WanJul 212 minThings You Should Know About the Rare Epilepsies & Social WellnessThe month of July marks Social Wellness Month! Social Wellness Month is meant to highlight the positive effects of healthy relationships...
RENMay 242 minEpilepsy in Asian Americans and Pacific IslandersThis May celebrates Asian American and Pacific Islander Heritage Month. This month is dedicated to celebrating the contributions Asian...
RENApr 222 minGet to Know Cure GABRB2About GABRB2 GABRB2 epilepsy has a range of phenotypes from febrile seizures to severe developmental disabilities, epileptic...
RENMar 242 minSpotlighting Rare Epilepsies this Purple DayPurple Day takes place annually on March 26 as an international effort to spread awareness and resources about epilepsy. It’s a...
RENMar 152 minThings You Should Know About the Rare Epilepsies and SleepMarch 13-19 marks Sleep Awareness Week 2022! Sleep Awareness Week celebrates and encourages healthy sleep. For those touched by the rare...
RENFeb 142 minInternational Epilepsy Day 2022Celebrate International Epilepsy Day & The Rare Epilepsies on February 14! Celebrated on the second Monday in February and founded by The...
RENFeb 92 minRare Disease & Rare EpilepsiesMANY CAUSES OF EPILEPSY ARE RARE Although epilepsy as a diagnosis is not rare, many causes of epilepsy are rare. When the underlying...
RENNov 2, 20212 minRaising Awareness of Rare Epilepsies During National Epilepsy Awareness Month (NEAM)Raising Awareness of Rare Epilepsies During National Epilepsy Awareness Month (NEAM)
RENDec 7, 20202 minFinding & Creating a Rare Epilepsy CommunityDiagnosed with a new rare epilepsy and looking for community? Tips follow from the Rare Epilepsy Network (REN) leaders. Do a google and...
RENNov 25, 20203 minGet to Know Tbc1d24 Mutation FoundationAbout Tbc1d24 Mutation Our rare epilepsy is caused by a mutation in the Tbc1d24 gene. For a person to be affected with this disorder, two...
RENOct 16, 20203 minGet to Know PMG Awareness OrganizationGet to know Polymicrogyria (PMG) & The PMG Awareness Organization
RENAug 26, 20202 minGet To Know Kathleen Farrell, MB BCh, BAOWhat is Your Role I am the Senior Director of the Epilepsy Learning Healthcare System (ELHS) as part of the National Office team of the...
RENJun 30, 20201 minLooking for Data for Rare Epilepsies?Attention Patients, Advocates & Researchers - Rare Epilepsy Data