Clinics for Rare Epilepsies
This page helps connect you to clinics and care centers for rare epilepsies. For each disorder, we’ve included links either to specific clinics or to organizations that maintain up-to-date directories.
We don’t maintain these resources ourselves but we’re pointing you to the experts who do. Our goal is to help you find accurate, reliable care information, quickly and easily! If you are aware of missing clinics, broken links or updates, please contact info@rareepilepsynetwork.org.
Disorder
Where to Find Clinic
Angelman Syndrome
CACNA1A-Related Disorders
Cardiofaciocutaneous syndrome (CFC)
Cavernous Malformation
CDKL5
Chromosome 8p
Dravet Syndrome
DRPLA
Dup15q
GRIN2B
KCNC1
Kleefstra Syndrome
Lennox-Gastaut Syndrome (LGS)
NR2F1
RASopathies
Ring14
Sturge-Weber Syndrome
STXBP1
SYNGAP1
Tuberous Sclerosis Complex (TSC)