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Clinics for Rare Epilepsies
This page helps connect you to clinics and care centers for rare epilepsies. For each disorder, we’ve included links either to specific clinics or to organizations that maintain up-to-date directories.
We don’t maintain these resources ourselves but we’re pointing you to the experts who do. Our goal is to help you find accurate, reliable care information, quickly and easily! If you are aware of missing clinics, broken links or updates, please contact info@rareepilepsynetwork.org.
Disorder | Where to Find Clinic |
|---|---|
Angelman Syndrome | AS Foundation |
Beckwith-Wiedemann/ Malan | Children's Hospital of Philadelphia |
CACNA1A- Related Disorders | UT Health Houston |
CDKL5 | Intl. Foundation for CDKL5 Research |
Cardiofaciocutaneous Syndrome (CFC) | CFC International |
Cavernous Malformation | Alliance to Cure Cavernous Malformation |
Chromosome 8p | Project 8p |
DRPLA | Cure DRPLA |
Dravet Syndrome | Dravet Syndrome Foundation |
Dup15q | Dup15q Alliance |
GRIN2B | GRIN2B Foundation |
Gould Syndrome | Dr. Musolino at Massachusetts General Hospital |
Hypothalamic Hamartoma | Hypothalamic Hope Hamartomas |
KCNC1 | Children's Hospital of Philadelphia |
Kleefstra Syndrome | The Kleefstra Syndrome Foundation |
Lennox- Gastaut Syndrome (LGS) | LGS Foundation |
NR2F1 | NR2F1 Foundation |
RASopathies | Rasopathies Network |
Ring14 | Ring14 USA |
SCN2A | Children's Hospital CO |
SCN2A | FamilieSCN2A |
SCN8A | Children's Hospital CO |
SLC13A5 | TESS Research Foundation |
STXBP1 | STXBP1 Disorders |
SYNGAPI | SYNGAP Research Fund |
Sturge-Weber Syndrome | The Sturge-Weber Foundation |
Tuberous Sclerosis Complex (TSC) | TSC Alliance |
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