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Clinics for Rare Epilepsies

This page helps connect you to clinics and care centers for rare epilepsies. For each disorder, we’ve included links either to specific clinics or to organizations that maintain up-to-date directories.

 

We don’t maintain these resources ourselves but we’re pointing you to the experts who do. Our goal is to help you find accurate, reliable care information, quickly and easily! If you are aware of missing clinics, broken links or updates, please contact info@rareepilepsynetwork.org

Disorder
Where to Find Clinic

Angelman Syndrome

CACNA1A-Related Disorders

Cardiofaciocutaneous syndrome (CFC)

Cavernous Malformation

CDKL5

Chromosome 8p

Dravet Syndrome

DRPLA

Dup15q

GRIN2B

KCNC1

Kleefstra Syndrome

Lennox-Gastaut Syndrome (LGS)

NR2F1

RASopathies

Ring14

Sturge-Weber Syndrome

STXBP1

SYNGAP1

Tuberous Sclerosis Complex (TSC)

Rare Epilepsy Network

info@rareepilepsynetwork.org

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