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Job Board

If there are any job openings REN members/partners would like REN to help advertise, please fill out this form.​

If you are an individual who is interested in working in the rare advocacy space and would like their information shared with REN members and partners, please fill out this form.

Development Director

Part-Time, Contractor/Hourly

Koolen-de Vries Syndrome Foundation

Ashley Point

Contact:

1/22/26

-

2/4/26

Research Assistant

Contractor/Hourly

Rare Epilepsy Network

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Vanessa Vogel-Farley

Contact:

1/21/26

-

2/17/26

Rare Epilepsy Network

info@rareepilepsynetwork.org

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EIN #: 39-3822834​

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