Visit REN registry: 1459 patients across 40 rare epilepsy diagnoses.
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RARES IN THE NEWS
The Epilepsy Foundation leads in the Rare Epilepsy Network PCORI Award, Epilepsy & Behavior (Oct. 2014)
Facilitating the Early Diagnosis and Equitable Delivery of Gene Targeted Therapies to Individuals with Rare Disease, Request for Informations (July 2021)