Updated: Mar 22
Celebrate International Epilepsy Day & The Rare Epilepsies on February 14!
Celebrated on the second Monday in February and founded by The Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILEA), International Epilepsy Day gives a voice to those with epilepsy so that they can share their experience globally. This day encourages everyone regardless of how they are affected by epilepsy to advocate for global human rights for people living with epilepsy. While epilepsy is not rare, there are many rare genetic, structural, metabolic, infectious, immune and causes of epilepsy.
Facts about The Epilepsies globally -
There are more than 50 million people living with epilepsy worldwide and a portion of these cases are forms of rare epilepsy
80% of people with epilepsy live in low to middle income nations
40% of people with epilepsy in industrialized nations do not get proper treatment
80% of people with epilepsy in developing nations do not get proper treatment
Celebrating International Partnerships for Rare Epilepsies
Epilepsy doesn’t know geographic borders. REN values its international partners that focus on rare epilepsies including Genetic Epilepsy Team Australia(GETA) (Australia based) and Epicare.EU (Europe based).
Find your Rare Epilepsy Community
Rare Epilepsy Network’s 80+ members serve international patients and families and several of our members are headquartered abroad. If you are diagnosed with a rare epilepsy, visit REN to meet 80+ individual disease organizations and find specialized information, education, support and community.
Learn more about International Epilepsy Day with the following resources:
If you are aware of other valued resources or to provide updates or correct errors, please contact: firstname.lastname@example.org.
Disclaimer: All resources are provided as a courtesy. We are not endorsing any organizations or providing medical advice.