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RENMar 242 minSpotlighting Rare Epilepsies this Purple DayPurple Day takes place annually on March 26 as an international effort to spread awareness and resources about epilepsy. It’s a...
RENMar 152 minThings You Should Know About the Rare Epilepsies and SleepMarch 13-19 marks Sleep Awareness Week 2022! Sleep Awareness Week celebrates and encourages healthy sleep. For those touched by the rare...
RENFeb 142 minInternational Epilepsy Day 2022Celebrate International Epilepsy Day & The Rare Epilepsies on February 14! Celebrated on the second Monday in February and founded by The...
RENFeb 92 minBlack Americans and Rare EpilepsiesBlack History Month is celebrated all throughout February. The purpose of this month is to honor African Americans from every time...
RENNov 2, 20212 minRaising Awareness of Rare Epilepsies During National Epilepsy Awareness Month (NEAM)Raising Awareness of Rare Epilepsies During National Epilepsy Awareness Month (NEAM)
RENSep 17, 20212 minGet to Know NR2F1 FoundationBosch-Boonstra-Schaaf optic atrophy syndrome (BBSOAS) was discovered in late 2013.
RENOct 4, 20205 minGet To Know The International Foundation for CDKL5 ResearchAbout CDKL5 CDKL5 deficiency disorder (CDD) is a rare developmental epileptic encephalopathy (DEE) caused by mutations in the CDKL5 gene....
RENOct 4, 20202 minGet To Know the Angelman Syndrome FoundationAbout Angelman Syndrome (AS) Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births or 500,000...
RENJun 30, 20201 minLooking for Data for Rare Epilepsies?Attention Patients, Advocates & Researchers - Rare Epilepsy Data
RENEpilepsy in Asian Americans and Pacific IslandersThis May celebrates Asian American and Pacific Islander Heritage Month. This month is dedicated to celebrating the contributions Asian...
RENGet to Know Cure GABRB2About GABRB2 GABRB2 epilepsy has a range of phenotypes from febrile seizures to severe developmental disabilities, epileptic...
RENSpotlighting Rare Epilepsies this Purple DayPurple Day takes place annually on March 26 as an international effort to spread awareness and resources about epilepsy. It’s a...