REN22 hours ago2 minGet to Know "Life" Association for Rare Diseases in ChildrenAbout "Life" Association for Rare Diseases in Children Our association is an umbrella association of patients suffering from various rare...
REN23 hours ago2 minGet to Know DYNC1H1 AssociationAbout DYNC1H1 Associated Neurological Disorders DYNC1H1 Associated Neurological Disorder (DAND) encompasses a recently identified group...
meranelakel9Mar 312 minGet to Know The Rory Belle FoundationAbout NARS1 Disorder The first pathogenic variants for NARS1(asparaginyl-tRNA synthetase 1) disorder were reported in 2020. The NARS1...
meranelakel9Mar 194 minGet to Know the Pediatric Epilepsy Surgery AllianceAbout Pediatric Epilepsy Surgery: Surgery is the least utilized treatment in all of epilepsy. Many different surgeries can stop or reduce...