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    Things You Should Know About the Rare Epilepsies & Social Wellness
    Justin Wan
    • Jul 21
    • 2 min

    Things You Should Know About the Rare Epilepsies & Social Wellness

    The month of July marks Social Wellness Month! Social Wellness Month is meant to highlight the positive effects of healthy relationships...
    12 views0 comments
    Epilepsy in Asian Americans and Pacific Islanders
    REN
    • May 24
    • 2 min

    Epilepsy in Asian Americans and Pacific Islanders

    This May celebrates Asian American and Pacific Islander Heritage Month. This month is dedicated to celebrating the contributions Asian...
    29 views0 comments
    Get to Know Cure GABRB2
    REN
    • Apr 22
    • 2 min

    Get to Know Cure GABRB2

    About GABRB2 GABRB2 epilepsy has a range of phenotypes from febrile seizures to severe developmental disabilities, epileptic...
    57 views0 comments
    Spotlighting Rare Epilepsies this Purple Day
    REN
    • Mar 24
    • 2 min

    Spotlighting Rare Epilepsies this Purple Day

    Purple Day takes place annually on March 26 as an international effort to spread awareness and resources about epilepsy. It’s a...
    21 views0 comments
    Things You Should Know About the Rare Epilepsies and Sleep
    REN
    • Mar 15
    • 2 min

    Things You Should Know About the Rare Epilepsies and Sleep

    March 13-19 marks Sleep Awareness Week 2022! Sleep Awareness Week celebrates and encourages healthy sleep. For those touched by the rare...
    30 views0 comments
    International Epilepsy Day 2022
    REN
    • Feb 14
    • 2 min

    International Epilepsy Day 2022

    Celebrate International Epilepsy Day & The Rare Epilepsies on February 14! Celebrated on the second Monday in February and founded by The...
    53 views0 comments
    Rare Disease & Rare Epilepsies
    REN
    • Feb 9
    • 2 min

    Rare Disease & Rare Epilepsies

    MANY CAUSES OF EPILEPSY ARE RARE Although epilepsy as a diagnosis is not rare, many causes of epilepsy are rare. When the underlying...
    68 views0 comments
    Black Americans and Rare Epilepsies
    REN
    • Feb 9
    • 2 min

    Black Americans and Rare Epilepsies

    Black History Month is celebrated all throughout February. The purpose of this month is to honor African Americans from every time...
    27 views0 comments
    Raising Awareness of Rare Epilepsies During National Epilepsy Awareness Month (NEAM)
    REN
    • Nov 2, 2021
    • 2 min

    Raising Awareness of Rare Epilepsies During National Epilepsy Awareness Month (NEAM)

    Raising Awareness of Rare Epilepsies During National Epilepsy Awareness Month (NEAM)
    97 views0 comments
    Get to Know Tbc1d24 Mutation Foundation
    REN
    • Nov 25, 2020
    • 3 min

    Get to Know Tbc1d24 Mutation Foundation

    About Tbc1d24 Mutation Our rare epilepsy is caused by a mutation in the Tbc1d24 gene. For a person to be affected with this disorder, two...
    483 views0 comments
    Tips to Navigate AES
    REN
    • Nov 20, 2020
    • 2 min

    Tips to Navigate AES

    The annual American Epilepsy Society is just around the corner. AES2020 is slated for December 4-8 and will be a virtual event for...
    47 views0 comments
    Get to Know STXBP1 Foundation
    REN
    • Nov 20, 2020
    • 3 min

    Get to Know STXBP1 Foundation

    About STXBP1 Disorder STXBP1 Disorder is a rare developmental epileptic encephalopathy caused by mutations in the STXBP1 gene. The STXBP1...
    152 views0 comments

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