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What Are the Rare Epilepsies?

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Our Mission:

To work with urgency to collaboratively improve outcomes of rare epilepsy patients and families by fostering patient-focused research and advocacy
To support, grow and maintain a network of rare epilepsy groups formed around a living overarching structure tasked with defining REN projects, in which REN groups are able to choose to participate. Learn more about our mission, vision and values here

Our Vision:

About REN Members

12

Partners

108+

Rare Epilepsy Organizations

40+

Newsletters

5

Major Projects Completed

Get to Know Some of REN's Members

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