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Projects

Welcome to the Project Dashboard! If you have recommendations for projects that REN should take on, contact us at info@rareepilepsynetwork.org.

Data
Sharing

Analyze and promote usage of REN registry data.

Adulthood Transitions

Resources for patient transitions from pediatrics to adults.

Policy + Advocacy

Respond to RFI's to promote the unique perspective of Rare epilepsies.

Standardizing Genetic
Reporting

Standardizing reporting across genetic diagnostic reports.

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