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Resources for patient transitions from pediatrics to adults.
What We Are
We coordinated a work group to create tools that could be used by individual organizations to help with patient transitions to adulthood and long-term care considerations.
A work group developed an Adult Transition Checklist which can be adapted for use by specific organizations.
The work group has also made a Google folder with resources for Adulthood Transitions.
Lead: Amanda Moore
Checklist Work Group:
Shelley Frappier, Cute Syndrome
Anne Karch, Dup14q
Dena Hook, Tuberous Sclerosis Alliance
Diane Linnehan, PMSF
Future Planning Tool Work Group:
Glenna Steele, Glut1
Charlene Son Rigby, STXBP1
Audrey Vernick, Brain Recovery
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