Resources for patient transitions from pediatrics to adults.
What We Are
We coordinated a work group to create tools that could be used by individual organizations to help with patient transitions to adulthood and long-term care considerations.
Lead: Amanda Moore
Checklist Work Group:
Shelley Frappier, Cute Syndrome
Anne Karch, Dup14q
Dena Hook, Tuberous Sclerosis Alliance
Diane Linnehan, PMSF
Future Planning Tool Work Group:
Glenna Steele, Glut1
Charlene Son Rigby, STXBP1
Audrey Vernick, Brain Recovery