Adulthood Transitions

 Resources for patient transitions from pediatrics to adults.  

What We Are

We are a work group creating tools that can be used by individual organizations to help with patient transitions to adulthood and long-term care considerations. 


The committee developed an Adult Transition Checklist which can be adapted for use by specific organizations.

Adult Transition Checklist

The committee has also made a Google folder with resources for Adulthood Transitions.

Google Resource Folder


Lead: Amanda Moore

Checklist Work Group: 

Shelley Frappier, Cute Syndrome

Anne Karch, Dup14q

Dena Hook, Tuberous Sclerosis Alliance

Diane Linnehan, PMSF


Future Planning Tool Work Group:

Glenna Steele, Glut1

Charlene Son Rigby, STXBP1

Audrey Vernick,  Brain Recovery