Coalition of professional societies, patient advocacy organizations, and governmental agencies working to improve the lives of individuals living with epilepsy.
A collaborative of 50+ organizations dedicated to raising awareness for Infantile Spasms.
Resources for Families with Developmental & Epileptic Encephalopathies (DEEs).
List-serve for researchers, clinicians, advocates and industry with an interest in known genetic conditions which are associated with autism.
Consortium for Outcome Measures and Biomarkers for Neurodevelopmental Disorders.
Informal list-serve for leaders of organizations to share resources and advice.
A patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.
Empower patients, build communities & drive forward momentum for rare disease globally.
Engages individuals, families and communities to transform health.