Support Expedited Vaccine Access for
High-Risk persons
REN joins TSC Alliance in a letter urging the National Governors Association to include individuals with rare diseases and primary caregivers of high-risk individuals as priorities in the administration of any FDA-approved or authorized COVID-19 vaccines. February 2021
REN joined EF and other patient advocacy groups in calling for rescission of Six Protected Classes Demonstration and protection of Access to Anticonvulsants.
February 2021
REN joined the Ad Hoc Group for Medical Research in support of least $46.1 billion for the NIH in FY 2022, a $3.2 billion increase, or an increase of BRDPI + 5% (7.4%), over the FY 2021 program level.
