Advocacy and Policy

Respond to RFI's to promote the unique perspective of Rare epilepsies.

What is a Request for Information?

description

Check out Rares in the News

Support for the Epilepsy Foundation

REN supports the Epilepsy Foundation’s application for the funding announcement Improving Epilepsy Education, Systems of Care, and Health Outcomes through National and Community Partnerships

Click me to read more

EF_Primary_Logo_0_edited.png

A Request to the U.S. Senate Committee of Appropriations

REN joins 51 other organizations in a request for U.S. Senate to appropriate $3.75 billion to the NCCDPHP to support its mission to help people and communities prevent chronic disease.

Click me to read more

RFI: Joni Rutter

Request for Information: Facilitating the Early Diagnosis and Equitable Delivery of Gene Targeted Therapies to Individuals with Rare Disease

Click me to read more