Rare Epilepsy Network (REN) Stakeholder Activity, Experiences, Education, and Needs Survey

📢 Are you a rare epilepsy patient, caregiver, provider, or advocate? We want to hear from you!

The Rare Epilepsy Network is recruiting participants for an online survey study exploring the challenges, needs, and priorities of the rare epilepsy community.

✅ Complete surveys on your own schedule

✅ Your responses are fully confidential

All are welcome — patients (18+), caregivers, clinicians, researchers, and advocacy reps.

👉 Click here to participate

Questions? Contact info@rareepilepsynetwork.org