REN2 days ago2 minGet to Know "Life" Association for Rare Diseases in ChildrenAbout "Life" Association for Rare Diseases in Children Our association is an umbrella association of patients suffering from various rare...
meranelakel9Mar 312 minGet to Know The Rory Belle FoundationAbout NARS1 Disorder The first pathogenic variants for NARS1(asparaginyl-tRNA synthetase 1) disorder were reported in 2020. The NARS1...
Justin WanAug 4, 20222 minIntroducing the New REN Map (Where’s the Rare?)!The newly added REN Map. The Rare Epilepsy Network has created a new page for families and clinicians to use! With 80+ organizations...
Justin WanJul 21, 20222 minThings You Should Know About the Rare Epilepsies & Social WellnessThe month of July marks Social Wellness Month! Social Wellness Month is meant to highlight the positive effects of healthy relationships...