REN2 days ago2 minGet to Know "Life" Association for Rare Diseases in ChildrenAbout "Life" Association for Rare Diseases in Children Our association is an umbrella association of patients suffering from various rare...
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meranelakel9Nov 29, 20234 minGet to Know ASXL Rare Research Endowment (ARRE) FoundationAbout ASXL-related disorders ASXL-related disorders are ultra-rare neurodevelopmental disorders typically caused by a de novo change to...
Justin WanJul 21, 20222 minThings You Should Know About the Rare Epilepsies & Social WellnessThe month of July marks Social Wellness Month! Social Wellness Month is meant to highlight the positive effects of healthy relationships...