Upper Midwest Rare Epilepsy Conferences

Watch Webinars from our members and other partners and hear about updates and news going on in the world of the Rare Epilepsies!

Meet the Members of the Rare Epilepsy Network
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Meet the Members of the Rare Epilepsy Network

For links to REN’s member organizations and websites click on this link: https://www.rareepilepsynetwork.org/members-partners Members featured in video in order of appearance: Batten Disease Support and Research Association Angelman Syndrome Foundation American Epilepsy Society CACNA1A Foundation The Brain Recovery Project: Childhood Epilepsy Cure Epilepsy Alliance for Genetic Etiologies in Neurodevelopmental Disorders and Autism (AGENDA) Tuberous Sclerosis Complex Alliance (TSC) The Cute Syndrome Foundation Ring 14 USA NORSE Institute Epilepsy Foundation NR2F1 Foundation International SCN8A Alliance Developmental & Epileptic Encephalopathies (DEE-P Connections) STXBP1 Foundation Koolen-de Vries Syndrome Foundation Hope for Hypothalamic Hamartomas TESS Research Foundation (SLC13A5) International Foundation for CDKL5 Research (IFCR) CureGRIN Foundation (Grin1, Grin2A, Grin2B & Grin2D) Nonsense Mutation Foundation CureShank FamilieSCN2A Foundation Rasopathies Network Phelan-McDermid Syndrome Foundation (PMSF) Dup15q Alliance Hope for HIE Grin2b Foundation Dravet Syndrome Foundation Spain (Fundación Síndrome de Dravet) SMC1A Foundation Fundacion Libellas (Gene NALCN and UNC80) CHAMP1 Research Foundation Coalition to Cure CHD2 Hope for ULD Glut1 Deficiency Foundation WWOX Foundation CFC International Cardio-Facio-Cutaneous Syndrome LGS Foundation KIF1A Schinzel-Giedion Syndrome Foundation Lightning & Love Foundation The Bow Foundation (GNAO1) PVNH Support & Awareness KCNQ2 Cure Alliance Genetic Epilepsy Team Australia TBC1D24 Foundation Epilepsy Learning Healthcare System (ELHS) Chelsea’s Hope Lafora Children Research Fund SCN2A Asia Pacific COMBINED Brain