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Our Mission:
To work with urgency to collaboratively improve outcomes of rare epilepsy patients and families by fostering patient-focused research and advocacy
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To support, grow, and maintain a network of rare epilepsy groups formed around a living overarching structure tasked with defining REN projects, in which REN groups are able to choose to participate. Learn more about our mission & vision here.
Our Vision:
What Are the Rare Epilepsies?
A rare epilepsy is considered rare when it affects less than 200,000 people in the United States.
About REN Members
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Partners
125+
Rare Epilepsy Organizations
40+
Newsletters
5
Major Projects Completed
Subscribe to Our Newsletter
The Rare Epilepsy RoundUp Newsletter is a monthly e-newsletter that keeps our membership up-to-date on member news, research, events, funding opportunities, and more. You can also read archived newsletters here to catch up to speed on what REN has been doing.
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Our Current Projects
Get to Know Some of REN's Members
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