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Our Mission:

To work with urgency to collaboratively improve outcomes of rare epilepsy patients and families by fostering patient-focused research and advocacy
To support, grow, and maintain a network of rare epilepsy groups formed around a living overarching structure tasked with defining REN projects, in which REN groups are able to choose to participate. Learn more about our mission & vision here.

Our Vision:

What Are the Rare Epilepsies?

A rare epilepsy is considered rare when it affects less than 200,000 people in the United States. 
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Subscribe to Our Newsletter

The Rare Epilepsy RoundUp Newsletter is a monthly e-newsletter that keeps our membership up-to-date on member news, research, events, funding opportunities, and more. You can also read archived newsletters here to catch up to speed on what REN has been doing.

Calendar/Member Events

Check out upcoming events for REN members and partners

If you'd like to add an event, click here

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