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Our Mission:
To work with urgency to collaboratively improve outcomes of rare epilepsy patients and families by fostering patient-focused research and advocacy
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To support, grow, and maintain a network of rare epilepsy groups formed around a living overarching structure tasked with defining REN projects, in which REN groups are able to choose to participate. Learn more about our mission & vision here.
Our Vision:
What Are the Rare Epilepsies?
A rare epilepsy is considered rare when it affects less than 200,000 people in the United States.
About REN Members
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Partners
125+
Rare Epilepsy Organizations
40+
Newsletters
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Major Projects Completed
Subscribe to Our Newsletter
The Rare Epilepsy RoundUp Newsletter is a monthly e-newsletter that keeps our membership up-to-date on member news, research, events, funding opportunities, and more. You can also read archived newsletters here to catch up to speed on what REN has been doing.
Our Current Projects
Get to Know Some of REN's Members
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