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Our Mission:

To work with urgency to collaboratively improve outcomes of rare epilepsy patients and families by fostering patient-focused research and advocacy
To support, grow, and maintain a network of rare epilepsy groups formed around a living overarching structure tasked with defining REN projects, in which REN groups are able to choose to participate. Learn more about our mission & vision here.

Our Vision:

What Are the Rare Epilepsies?

A rare epilepsy is considered rare when it affects less than 200,000 people in the United States. 
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Subscribe to Our Newsletter

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The Rare Epilepsy RoundUp Newsletter is a monthly e-newsletter that keeps our membership up-to-date on member news, research, events, funding opportunities, and more. You can also read archived newsletters here to catch up to speed on what REN has been doing.

Our Current Projects

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See all projects

About REN Members

12

Partners

125+

Rare Epilepsy Organizations

40+

Newsletters

5

Major Projects Completed

Get to Know Some of REN's Members

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